The End

Sometimes the end is just a different beginning. For my Mom, the end of her earthly existence is the beginning of her heavenly life with my Dad and all her other loved ones that have passed before her, especially her Daddy. Having passed away tragically when she was just 20, she missed him immensely all her life. If you asked her the what the best part of her childhood was she would tell you “playing in the yard with Daddy.” This is a girl that had a pet raccoon, a pet
monkey and a pet rat (appropriately named rat-rat), who lived in Hyde Park of Austin, went on numerous vacations and had wonderful friends that played dress up and had doll tea parties with her. Seems idyllic. But things aren’t always as they seem and life became harsh when her Dad died (and probably before due to his manic depressive disorder). She never got along particularly well with her own mother and my Dad provided a much needed escape and the security to live her own life.

Early love letters are filled with “darlings” and “dears.” They were two halves of a whole and couldn’t live without each other. Dad understood Mom in the way that most men understand women. She needed love, patience, a strong shoulder to cry on and security and he gave that to her and so much more. Early pictures of married life show a very happy couple and a gorgeous woman that I can’t even believe is my Mom – she just glowed – but always with a tinge of sadness in her eyes and way of being. Just a tinge. She was very private and wasn’t going to share her emotions with everyone.

In a way, they never did have to learn to live without each other. As Mom’s condition worsened she forgot who people were, and while she recognized me the longest, after Dad died she never asked for him. Out of sight and out of mind…. sad to say but that’s the truth, or she didn’t have the words to wonder where he was, which is a distinct possibility but one that I don’t dwell on because it hurts too much to allow it. I prefer to think that she truly didn’t remember him after his death. She was so fragile at that time that we never told her he died. The day before Mom passed I kept telling her that Dad was waiting for her, that he was there before her and needed her with him now. I didn’t want her to somehow be “waiting” for him, needing to hear his voice one last time. I didn’t know how much she understood, if anything, but I felt it was important to let her know he was there, waiting to dance with her again.

Dad couldn’t handle living without Mom, either. I remember asking him once if he would be able to try and go on without her after she passed, and he wouldn’t even contemplate it. He just said “I’ll try.” He didn’t want her to go into a care home, because even though she was angry and bitter (and scared) due to the disease – this was the year before she went into the memory care facility – at least she was THERE, with him. And not having her in the house with him was incredibly difficult for my Dad. I think the cancer was a blessing for him, because they literally were only truly apart for 18 months before being reunited in heaven. He didn’t want to live on without her, and he didn’t have to.

If Mom hadn’t had Alzheimer’s (and I’m not saying it was a blessing) – she would have had to try to live without him. She was a very strong woman, but she couldn’t make it without her man. So God must have done what he felt best. That’s the way I have to look at everything that has happened in the past four years.

Is it the end for me too? It’s the end of suffering for my parents’ sake. It is the end of worry and stress and advocating on their behalf. These past four years have been the hardest of my life. I am all cried out. My eyes are as dry as a desert in Mexico. As people filed in and said goodbye to Mom, there were plenty of red eyes, sniffles and tears. And I was jealous. I wanted to cry, to rant, to rage, to weep and to bawl. But I can’t. I am numb. My grief has been spent over four long
years and while maybe I should feel some relief at last, relief that my Mom’s suffering is at an end, and for my Dad – that they are together again, I don’t. I don’t feel a thing. I must get all the last bits done for them. There’s a visitation to be held, a service and a burial. There’s banks to call, and the Army to inform. There’s my house to clean and food to cook for after the visitation.
There’s her room to clean out. There’s so much to do. I am not done yet.

I listened to songs this morning in my car. Songs that have made me cry in the past. Songs I can really relate to. Nothing. No tears. No lump in the throat. I am not without feelings. But what I feel most right now is just…. empty.

A new beginning is waiting for me. When it will start, I am not sure. When my heart fills back up again, maybe. When my Mom is in her final resting place with my Dad, maybe. When I see the headstone for the first time, maybe. I do not know what the future holds for me now. It’s time to reinvent myself, in their honor, and with their undying love for me and each other, to step up
once again and become me again.

This end is just a different beginning

Fading

Mom’s light is fading. I think I’ve really known this for awhile now, but it became clear last night when I talked to her hospice nurse, Roxie. Roxie has always cut straight to the truth and I appreciate that about her. She has told me every little thing that I need to know about Mom’s health and she is literally an angel on earth, along with her partners that see to Mom when she’s not available. I have felt completely supported this whole season of Mom’s life and that goes a long way, my friends. It has made my life so much easier, and Mom’s so much more comfortable. I highly recommend hospice care to anyone facing a life-ending diagnosis, and the earlier the better.

For a few weeks now Mom has been mostly asleep. She’s been eating, but also aspirating her food. This means that she has trouble swallowing, and that a lot of her food is going into her lungs instead of her stomach. The signs of aspiration include a wet cough while eating, and afterwards, taking a long time to swallow, and runny eyes and nose while eating. The other day while I was there, her nose was running so bad while I tried to feed her and tears leaked from her eyes. She will open her eyes sometimes, but I’m not even sure she can still see. She does not focus on anything when her eyes are open. They mostly stay shut, even while eating. Her food has been modified to be like baby food – mashed up and mixed to a consistency that’s easier for her to swallow, but she is beginning to show a lack of interest in eating at all.

The body changes slowly with this disease. Mom doesn’t need a lot of calories. She’s completely immobile. But she does need protein to stay alive, and without eating it in her food, she isn’t getting enough. She has a sore on her bottom that isn’t healing, and won’t heal because she doesn’t have enough protein in her body to heal anything. This sore has been around a long time, and it doesn’t matter if they turn her from side to side, lay her down, sit her up or whatever – that sore isn’t going away.

She is retaining fluid. Her body can’t absorb fluid or expel it like it should. Which leads to random swelling. If she lays on her left side, then the left side of her body will be swollen, and same if she lays on her right side. Her hand has been swollen for a while now and we don’t know why, along with this hard swollen mass she has in her chest. X-rays were done and show nothing. Her body just can’t cope anymore. Lifting her by the arms has her grimacing but other than that she is very comfortable.

My brother will be here today. Perfect timing Roxie told me. Alarm bells ring and I know what that means. I talk to Tony, and I tell Baby Girl. She pulls a long face and says she wants to go see Granny with me today, but then she is quickly back to watching youtube videos and rejecting her bedtime. I believe she let go long ago, and while it will still be hard for her to say a final goodbye, it won’t cause any trauma like it did with Grandpa. As brave and strong as she is, she still won’t really talk about Grandpa. She says that’s her memories, and they’re special, and she doesn’t want to talk about him with anyone else. Especially not with her counselor, which is a shame but I can’t force her to do so. And while she love Granny dearly, she was forced to confront her mortality many months back.

I text my brother to let him know what we’ll be facing when he gets here. “I’ll be ready” he says. I know I won’t be.

I text some friends. They shower me with love and care.

She is fading. She will be made comfortable. Soon she’ll be dancing with my Dad in the Glory land. And I’ll truly have to live on without her.